PAIVS

Yesterday was an emotional draining day! We had our appointment with our cardiologists and also got a tour of the NICU at Children's Hospital and where Baby Wiilliam will be spending alot of his time. I think reality has finally set in for me. After our consultation with the doctor he gave both the good and bad. He said they will not know how bad things are until he is born, which is what Scott and I expected. He was encouraged by the blood flow in the right ventricle even though it is not much. He also did say he does no anticipate the right ventricle growing anymore. He also said the doctor's these days do not like to use the term Hypoplastic Right Heart. He said Baby Will had something called PAIVS (Pulmonary atresia with intact ventricular septum). It is is a rare congenital cardiac lesion characterized by the right ventricular development, a blocked pulmonary valve, and possible extensive coronary connections. Prognosis and management depend on the degree of blood flow in the right valve. Will will not have to surgery right away after being born and instead will be monitored for the amount of blood flow in the right side of the heart.( He will spend at least 3-4 weeks in the NICU before surgery and after) After that best case scenario would be one surgery involving a shunt to help the blood flow out of the lungs. Dr. Hammell did give us the good and bad but right now we are only focusing on the good. I think positive thoughts is what making Baby Will so strong. We have a really long ahead but we are strong and with the support of everyone I know we will make it no matter what happens.